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Living with F.A.C.S - Foetal Anticonvulsant Syndrome


Released 02/12/2019

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Panning hawk eye view of the city

Text appear: “Foetal Anticonvulsant Syndrome:” – “Living with F.A.C.S”

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Woman working in the kitchen

Transcript

Jaz Astill – “What I wish my mum would have known the medication she was taking was that how it would affect us and what would be in store for us and how it would affect our everyday life and the struggles we would have to face. All the mental health problems that come with it so I've suffered from anxiety, OCD and it frustrates”

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Jaz Astill sitting with her sister in a kitchen setting

Text appears: “Jaz Astill”

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Jaz Astill – “Me that that I have to go through this like I guess pain every day.”

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Tash Astill sitting with Jaz Astill in the kitchen

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Tash Astill – “I have to constantly ask people to repeat the question multiple times because I don't understand it because I of my AVD that I have, so auditory processing Disorder and also like with my social skills and friendships and everything, it's quite hard to like communicate with people because I just don't know how.”

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Astill sisters and family playing with a puzzle

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Tash Astill – “Some of my friends when I tell him about my syndrome, they don't quite understand the depth of it, so they're like "What's that?"”

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Tash Astill sitting in the kitchen

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Tash Astill – “"I don't know what that is" and everything and then I try and explain to them and then they're confused and everything like that."

Tash Astill – “Yeah but I know that they support me and they like me who I am and stuff like that”

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Jackson Garratt playing video game

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Jackson Garratt – “I started living independently five years ago so from me that was kind of but frightening like just a big roller coaster”

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Jackson Garratt sitting on the bed in a bedroom setting

Text appears – “Jackson Garratt”

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Jackson Garratt – “of ups and downs so and here I am today living almost independently."

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Jackson Garratt cooking in the kitchen

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Jackson Garratt – “My cooking is improving because my occupational therapist has come up with a selection of this recipes she's found and modified to my needs.”

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Jackson Garratt placing his bowl of food down on the table and eating it

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Jackson Garratt – “Part of this journey has also been learning about how to stand up for myself. If I have a problem with someone or something that I can go to ACC and get help for it."

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Jackson Garratt sitting on the bed

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Jackson Garratt – “So you know it's been very easy, an easy process for me.”

Tash Astill decorating a Christmas tree with her sister

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Tash Astill – “I can give other youth who have F.A.C.S advice and give them some support and communicate with them.”

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Taz Astill sitting in the kitchen with her sister

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Jaz Astill – “Yeah it's good having one another because we're able to support each other and talk to each other about what's going on and yeah we”

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Jaz and Tash Astill posing with their parents and pan of Astill family

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Jaz Astill – “can give each other advice."

Tash Astill - "We can bounce off information and like figure out what the next steps are and yeah have fun as well.”

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Jackson Garratt sitting on the bed

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Jackson Garratt – “The best thing about my life at the moment is, is that I am not letting my SVS get the best of me.”

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Jackson Garratt walking with a woman at a lake side

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Jackson Garratt – “ I don't feel like I'm isolated I've got people who care for me.”

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Jackson Garratt sitting on a picnic table with the Astill family

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Jackson Garratt - "On Facebook I have at least ten people who were mums to SVS sufferers and I haven't even met them so that’s quite interesting because I feel there even though I don't know them I still know their stories and”

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Jackson Garratt sitting on the bed

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Jackson Garratt – “we all share one thing in common.”

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Text appears: “Anti-epileptic medication is a critical part of many women’s lives.” – “If you want to start a family or think you could be pregnant, do not stop taking your medication and see your doctor or specialist.” – “Continue to use two forms of contraception until then.”

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FACSNZ logo appears with website address under it

www.facsnz.com

ACC logo appears with website address under it

www.acc.co.nz